“At four months of age, Ruby was diagnosed as hypotonic, and an MRI two months later showed microcephaly (an abnormally small head) and Leukoencephalopathy (decreased white matter in the brain).
In the ensuing months and years, we have pursued numerous neurological, ophthalmological, physical, and genetic evaluations and tests. The doctors have not yet provided a definitive answer as to the cause of Ruby’s delays and impairments, though she did receive a recent diagnosis of hypotonic cerebral palsy from a neurologist.
In order to help Ruby advance and build up her strength, we enrolled her into Senses In Motion with René Manker. She receives the Anat Baniel Method (ABM) of therapy. This therapy treats Ruby’s whole body as an interconnected system and incorporates the brain to stimulate new learning.
Due to ABM therapy, Ruby has grown much more adept at engaging with the world around her and more purposeful in her exploration of it. Her skills have grown, along with her comfort.
This kind of therapy is not covered by insurance, so René recommended that we apply for a scholarship through Family Hope Foundation. With a scholarship, Ruby was able to continue to receive therapy and some of the financial burden was lifted off of us.”
Dear friends, I’ll always remember, as a Make-A-Wish volunteer, meeting Wish kids for the first time and learning more about their hopes and dreams and wishes. I’ll always remember, as a Make-A-Wish employee, collaborating with a team to make sure those wishes became a reality. I’ll always remember, as a teacher, working with Darryl and […]
A diagnosis of severe hydrocephalus at 20 weeks gestation meant Jackson’s parents faced many unknowns before he was born. Hydrocephalus is a condition where there is an excessive buildup of fluid inside the brain. Critical medical decisions would be necessary immediately after his birth. Jackson made his entrance into the world in December of 2021. […]
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